Privacy & Policy

This Privacy Policy describes how information is collected, used, stored, and protected when you visit or interact with the website of  Leili Rohani (“we,” “our,” or “us”). Leili Rohani specializes in medical genetics, genetic testing, genetic counseling, and research aimed at advancing personalized and precision medicine. We are committed to protecting your privacy and handling your personal data in a transparent and secure manner.

By accessing or using this website, you agree to the terms outlined in this Privacy Policy. If you do not agree with any part of this policy, please discontinue use of the website.

1. Information We Collect

We may collect both personal information and non-personal information from users of our website.

1.1 Personal Information

Personal information is data that can identify you as an individual. This may include, but is not limited to:

  • Full name

  • Email address

  • Phone number

  • Country or region of residence

  • Information submitted through contact forms

  • Information voluntarily provided when requesting consultations, genetic counseling, or additional information

We only collect personal information when you voluntarily submit it to us.

1.2 Non-Personal Information

 

We may automatically collect non-identifying information, including:

  • IP address

  • Browser type and version

  • Device information

  • Pages visited and time spent on the website

  • Referring URLs

This data is used for analytical and performance improvement purposes only.

1.3 Health and Genetic-Related Information

If you choose to contact us regarding genetic services, counseling, or research inquiries, you may voluntarily share health-related or genetic information. Such information is treated with the highest level of confidentiality and is used solely for communication and informational purposes unless otherwise agreed.

This website does not provide medical diagnosis or treatment, and submission of information through the website does not establish a doctor–patient relationship.

2. How We Use Your Information

The information we collect may be used for the following purposes:

  • To respond to inquiries and communication requests

  • To provide information about genetic services, research, or personalized medicine

  • To improve website functionality, user experience, and content quality

  • To comply with legal or regulatory requirements

  • To protect the security and integrity of our website

We do not sell, rent, or trade your personal information to third parties.

3. Cookies and Tracking Technologies

This website may use cookies and similar technologies to enhance user

experience. Cookies help us understand how visitors interact with the site

and allow us to improve performance and content.

You can choose to disable cookies through your browser settings. Please

note that some features of the website may not function properly if cookies

are disabled.

4. Data Protection and Security

We implement appropriate technical and organizational measures to safeguard your personal information against:

  • Unauthorized access

  • Disclosure

  • Alteration

  • Loss or misuse

While we take strong precautions, no method of data transmission over the internet is 100% secure. Therefore, we cannot guarantee absolute security.

5. Sharing of Information

We may share information only in the following limited circumstances:

  • With trusted service providers who assist in website operations (under confidentiality obligations)

  • When required by law, regulation, or legal process

  • To protect the rights, safety, or property of users or the public

Any shared data is limited to what is strictly necessary.

6. International Users

This website may be accessed by users worldwide. By using the site, you

acknowledge that your information may be processed and stored in

countries with different data protection laws than your own.

We strive to comply with applicable international data protection

regulations, including principles aligned with GDPR where applicable.

7. Third-Party Links

This website may contain links to external websites for informational

purposes. We are not responsible for the privacy practices, content, or

security of third-party sites. We encourage users to review the privacy

policies of any external websites they visit.

8. Children’s Privacy

This website is not intended for use by children under the age of 13 (or applicable age in your jurisdiction). We do not knowingly collect personal information from children. If you believe that a child has provided personal data through this website, please contact us immediately so we can remove the information.

9. No Medical Advice Disclaimer

All content provided on this website is for educational and informational purposes only. It is not intended as medical advice, diagnosis, or treatment. Always consult a qualified healthcare professional regarding medical or genetic concerns.

10. Your Rights

Depending on your location, you may have the right to:

  • Access your personal data

  • Request correction or deletion of your information

  • Withdraw consent for data processing

  • Request information about how your data is used

To exercise these rights, please contact us using the information provided below.

11. Changes to This Privacy Policy

We reserve the right to update or modify this Privacy Policy at any time. Changes will be effective immediately upon posting on this page. We encourage users to review this policy periodically.

12. Contact Information

If you have any questions or concerns about this Privacy Policy or how your information is handled, please contact:

Leili Rohani
Medical Genetics & Personalized Medicine
leili_ro@mit.edu
leilirohani.com

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